Adhera Health Pioneers Family-Focused Digital Health Solutions for Children with Chronic Conditions
Adhera Health Pioneers Family-Focused Digital Health Solutions for Children with Chronic Conditions
Reveals Transformative Research Results at ISPAD 2024
Adhera Health unveiled groundbreaking research at the International Society for Pediatric and Adolescent Diabetes (ISPAD) conference showcasing how innovative digital interventions can enhance wellbeing for families affected by Type 1 Diabetes (T1D) and childhood obesity.
The first study (NCT05483803), "Impact of a Personalized Digital Intervention on the Wellbeing of Caregivers of Children with Type 1 Diabetes and Diabetes Management," revealed a significant link between caregiver stress and the child's overall wellbeing. The findings underscore the critical importance of providing comprehensive support to the entire family in managing chronic conditions. The study enrolled 90 families of children with type 1 diabetes aged 8-15 years. Caregivers interacted with the Adhera® Caring Digital Program which emphasized education, provided motivational, gradual, and substantiable change recommendations along with a dedicated coach. Caregivers completed surveys on their own wellbeing and their child's quality of life at the start and end of the 3-month program.
Results showed a significant correlation between caregiver stress and poorer child wellbeing (r=-0.37, p<0.001), emphasizing the importance of addressing caregiver wellbeing. Post-intervention, the percentage of families reporting good wellbeing increased from 31.8% to 43.4%, while those with poor caregiver wellbeing decreased from 38.8% to 9.6%.
Adhera Health also presented initial findings from an ongoing study sponsored by the National Institutes of Health/National Institute on Minority Health and Health Disparities (1R43MD018551-01). The presentation was titled " Adaptation of a Digital Health Intervention for Chronic Condition Related Fatigue to the Latino Population.”
This research seeks to rigorously assess the acceptability of a digital intervention within the Latinx community and devise a tailored strategy for its effective implementation in urban Latinx neighborhoods. Adhera Health conducted over 15 participatory workshops, engaging more than 150 families and stakeholders, including parent groups from diverse backgrounds such as African American and non-Hispanic white families. These sessions provided critical insights into the unique needs and preferences of the Latinx population, establishing a foundation for culturally sensitive, community-driven solutions in chronic disease management. Latinx parents of children with T1D rated the Adhera Caring Digital Program positively (77.5-88), while parents of children with obesity scored even higher (94-100). All participants would recommend the program, describing it as "easy," "understandable," and "user-friendly."
"These findings validate our mission to adopting a holistic approach that supports the entire family unit,” said Ricardo C. Berrios, Co-Founder and CEO of Adhera Health. “Our research proves that personalized digital interventions significantly enhance caregiver wellbeing, which in turn enables families to more effectively manage their child’s chronic condition, ultimately leading to improved quality of life for the child and the family as a whole.”
Adhera Health is actively scaling its family-focused model to encompass a broader range of pediatric chronic conditions and communities across the US. Its vision is to ensure that all families of children with chronic illnesses have equitable access to innovative digital health solutions that are tailored to address their specific needs and improve health outcomes.
Adhera Health at HLTH 2024
Adhera Health's team will showcase live demonstrations of the Adhera Caring Digital Program at the Scale Health booth (#3210-13) at HLTH 2024, where attendees can experience how the program empowers families managing pediatric chronic conditions through engaging and personalized support.
This blog article is a reprint of the press release - https://www.einpresswire.com/article/750051619/adhera-health-pioneers-family-focused-digital-health-solutions-for-children-with-chronic-conditions
New Study Reveals Impact of Personalized Digital Companion on Caregivers of Children with Type 1 Diabetes
Adhera Health’s AI-Precision Digital Companion Improves Wellbeing of Caregivers for Children with Type 1 Diabetes
Adhera Health’s AI-Precision Digital Companion Improves Wellbeing of Caregivers for Children with Type 1 Diabetes
Groundbreaking research on the beneficial effects of Adhera Health’s AI-Precision Digital Companion on the wellbeing of caregivers of children with type 1 diabetes and its effectiveness to support personalized pediatric care is set to be unveiled at the 46th Congress of the Spanish Society of Pediatric Endocrinology – SEEP 2024.
Led by researchers from Hospital Universitario Miguel Servet and Adhera Health and sponsored by Novo Nordisk, this study (CARING-T1D) sheds light on the transformative potential of personalized digital interventions to enhance health outcomes for families managing chronic conditions. Building upon previous findings released at SEEP and other endocrinology conferences, the study underscores the pivotal role of personalized digital companions in providing tailored support, empowering caregivers, and driving positive engagement and behavior change to better integrate care for families affected by type 1 diabetes.
Dr. Antonio de Arriba, Pediatric Endocrinologist at the Hospital Universitario Miguel Servet and the principal investigator, will present the new findings at this year’s SEEP meeting, which takes place May 8 to 10, 2024, in Las Palmas de Gran Canaria (Spain).
“The findings highlight how Adhera Health’s personalized digital companion and interventions impact the wellbeing of caregivers and children with type 1 diabetes, revolutionizing pediatric healthcare by offering targeted support, educational content, and empowering the entire family unit,” remarked Dr. de Arriba, “This study illustrates the potential of delivering precision medicine that acknowledges the uniqueness of each family, which is essential in pediatric care for all conditions.”
Results of the new study demonstrate that a digital intervention program delivered by the Adhera AI-Precision Digital Companion had a positive effect on the overall wellbeing of the parents while also supporting integrated care via advanced AI algorithms. This means that the intervention not only positively impacted the parents’ emotional and psychological state but helped clinicians better understand the needs of families.
"The wellbeing of the entire family is paramount in managing diabetes effectively," emphasized Ricardo C. Berrios, co-founder, and CEO of Adhera Health. "Our study, alongside others we've conducted, highlights the importance of involving the whole family unit in the design of interventions and treatment plans for pediatric diabetes. It's crucial for healthcare strategies to address the needs of both children and their primary caregivers to achieve better health outcomes. Our findings support that data-driven solutions can help personalize pediatric care by considering the distinct needs of each family."
The study results also show that stratifying families based on the child’s metabolic control and the wellbeing of the caregiver provides a valuable approach for assessing the overall wellbeing of the family unit. By considering these factors together, healthcare professionals can gain a more nuanced understanding of the family’s health, and subsequently tailor interventions more effectively to meet the specific needs of each family.
This blog article is a reprint of the press release - https://www.einpresswire.com/article/709927170/new-study-reveals-impact-of-personalized-digital-companion-on-caregivers-of-children-with-type-1-diabetes
Time to Talk about Family Caregiver’s Mental Health
Time to Talk about Family Caregiver’s Mental Health
May is Mental Health Awareness Month, a national movement to raise awareness about mental health. One of Adhera Health’s mantras is “There is no health without mental health” because mental health is so incredibly important to general wellness.
Over the past year, our clinical and technical teams have been working closely with healthcare providers, individuals with chronic conditions, and their family caregivers designing and implementing adaptive self-management digital programs that improve the overall health and wellbeing of both the chronic-care patient and their family caregiver.
Since this is Mental Health Awareness Month, Adhera Health wants to bring awareness to the mental wellbeing of family caregivers, who are often forgotten. According to the CDC, nearly two-thirds of unpaid caregivers of adults reported adverse mental or behavioral health symptoms. In addition, 27% of parents of children under 18 reported their mental health had worsened during the COVID pandemic.
This is a major problem because research has shown that a family caregiver's health can affect the entire family and impact the individual's health outcomes. Specifically, the mental wellbeing of parents taking care of a child with a chronic condition has been associated with less effective parenting and poorer disease management.
This is why it's important to provide a comprehensive therapeutic approach to chronic care patients that must include addressing the physical and mental wellness needs of family caregivers.
The good news is that digital tools have been shown to help with self-management, education, and coaching support to reduce a family caregiver’s depression, stress, and anxiety.
“ Caregivers want to feel heard, and supported and that their doubts are resolved as soon as possible,” said Silvia Quer, Palomas, PsyD, Adhera Health Digital Health Research Associate who’s worked directly with family caregivers in several clinical trials. “Usually a medical consultation has a short duration, where the goal is to deal with chronic disease. However, when the patient and caregiver come home and encounter everyday situations involving the chronic condition, it is the moment when doubts, fears, anxiety, and stress assault.”
This is the moment when digital programs have their greatest prominence. The family caregiver can open the app, and get information related to their physical condition as well as tools to manage the disease. When negative feelings appear, the family caregiver finds highly personalized self-management tools to deal with their mental wellbeing. All this support brings peace of mind and increases self-esteem and self-confidence.
Family caregivers need training, support, and reminders of self-care to improve their health, wellbeing, and overall quality of life. When this happens, the health-related quality of life improves for everyone in the family, and digital health tools and programs can help with this.
Contact us to find out more about how Adhera Health empowers family caregivers of individuals with chronic diseases.
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